A couple of weeks ago I mentioned that after 11 months our appt for Koley at the center for autism spectrum disorders at Childrens had been scheduled. We had our first appointment on the 8th. Several rounds of testing were completed that included, play and speech evaulations and a non verbal IQ test.
We received a call in the afternoon on the 9th regarding the speech evaulation. He had fallen below the levels and they wanted him to return to have further testing completed. We visited again on the 15th. That afternoon we received another call to tell us that he does indeed have a moderate language delay. His respective and expressive levels are at an even level which is positive but below what they should be. They recommend and have referred him for therapy thru Childrens as well as the school district.
It is so unbelievably frustrating that we are just now learning all of this and that I couldn't have helped him sooner. I try to believe that I have done and continue to do and push for everything possible to help him.
We haven't learned the results of the other testing. They said it would be a couple of weeks. They had to have time to review his paperwork and tests. I am becoming more and more anxious.
About Me
brody munkers
my sweet sweet baby boy. the youngest. he is amazing. his eyes light up when he sees or hears his mama. he is such a joy. i am so very blessed to have such a amazing baby. he is my thumb sucker, grinning, belly laugher.
koley
my oldest, my first. he's my challenge. my witty, funny, active challenge. he struggles, he hurts and i can't make it better. i don't know how to make it better. he loves to color, write and journal. he wants to please and be accepted. i want him to be healthy and happy!
abbies!
my 3rd. a middle child of sorts. she is my entertainer, my broadway performer. my lover. she has a smile that is contagious. she is such a joy that pushes her limits! we kid about her horns...they are hidden by all that hair! she loves her bubbies and sissy more than anything. daddy far outranks her mama.
lanee girl
sweet, sweet lane. my second baby, a middle child of sorts. she is drama, she is thoughful and kind. she asks entirely too many questions that she knows the answers to. she smiles all the time. she is so creative, she is an artist. i call her my "little mommie" as she is so helpful! she has been through so much in her young life. i treasure her and couldn't live without her for a minute.
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i heart him!
4 comments:
You know now. That's all that matters. Your family will get through it. The Johnsons are a strong bunch!
Speech issues can be so subtle that the results even surprise the pathologist doing the assessments. You're learning more and more about Kole...you're not a bad mom. In fact, you're one of the strongest advocates I know (and I know a lot of them!).
Hang in there. You are not alone.
Erin you are a terrific mother. You have done all you can and continue to do all that you can to support and provide the right treatment for Kole.
I'm sure it's tough. Hang in there. You are strong and you are surrounded by so many people who care!
Thanking God for this step in the right direction. Will continue to pray for more and more steps in the direction of helping Koley.
love you guys.
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